Primary Ciliary Dyskinesia
These medical organizations, hospitals, and clinics may be able to support you in managing PCD.
Website: www.lung.org
Phone: 1-800-LungUSA (800-586-4872)
Address: (National Office)
55 W. Wacker Dr., Suite 1150
Chicago, IL 60601
Email: info@lung.org
American Lung Association
American Thoracic Society
Website: site.thoracic.org
Phone: 212-315-8600
Address: Church Street Station
PO Box 3421
New York, NY 10008-3421
Email: atsinfo@thoracic.org
Children's Hospital Colorado
Website: www.childrenscolorado.org
Phone: 720-777-1234
Address: (Anschutz Medical Campus)
13123 East 16th Av.
Aurora, CO 80045
Email: (use the "Contact Us" form on their website)
Children's Hospital of Philadelphia
Website: www.chop.edu
Phone: 800-879-24674
Address: 3401 Civic Center Blvd.
Philadelphia, PA 19104
Email: chopopensupport@chop.edu
Cleveland Clinic
Website: my.clevelandclinic.org
Phone: 855-352-0280
Address: (Main Campus)
9500 Euclid Avenue
Cleveland, OH 44195
Email: submit request via the secure online form on their website
Connecticut Children's Hospital
Website: connecticutchildrens.org
Phone: 860-545-9000
Address: 282 Washington St.
Hartford, Connecticut 06106
Email: (does not provide a single, public facing general email; use the department specific contacts email address found on their website)
PCD Foundation
Website: www.pcdfoundation.org
Phone: 844-287-37823
Address: 10023 Morris Rd.
Bloomington, MN 55437
Email: info@pcdfoundation.org